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Susan Lynn Sullivan-Bolyai DNSc, MN, RN, CNS

TitleProfessor
InstitutionUniversity of Massachusetts Medical School
DepartmentGraduate School of Nursing
AddressUniversity of Massachusetts Medical School
55 Lake Avenue North
Worcester MA 01655
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    Other Positions
    InstitutionUMMS - School of Medicine
    DepartmentPediatrics

    InstitutionUMMS - Graduate School of Nursing
    DepartmentGraduate School of Nursing


    Collapse Biography 
    Collapse education and training
    Metropolitan State College of Denver, Denver, CO, United StatesBSNNursing
    Emory University, Atlanta, GA, United StatesMSNChild Health
    Yale University, New Haven, CT, United StatesDNSCNursing Science & Research
    Yale University, New HavenPost-Doctoral Fellowship7/2002Family focused interventions

    Collapse Overview 
    Collapse overview
    For decades Dr. Sullivan-Bolyai has worked clinically with children who have special health care needs and their families on day-to-day management and continuity of care (masters/CNS from Emory University). Since 1995 she has focused her research on preparation, education and support for families to help manage childrens’ care in the home and community settings. She received her DNSc and completed a 3-year postdoctoral fellowship (with Dr. Margaret Grey) at Yale University School of Nursing. Her main areas of expertise are family-focused interventions that address parent and child social support and education for Type 1 Diabetes day-to-day management, including the innovation of using a child-size human patient simulator for parent and child education. She also uses qualitative description to inform her interventions. She was a faculty member for 11 years at UMW; followed by 2 years as Director of PhD Program at NYU Meyers CN; Dr. Sulivan-Bolyai has returned to UMMS as the Associate Dean of Research and Innovation and looks forward to working with her intra and interprofessional colleagues and PhD students towards improving the day-to-day management of families with children diagnosed with T1D.


    Collapse Bibliographic 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    List All   |   Timeline
    1. Ramchandani N, Way N, Melkus GD, Sullivan-Bolyai S. Challenges to Diabetes Self-Management in Emerging Adults With Type 1 Diabetes. Diabetes Educ. 2019 Jul 13; 145721719861349. PMID: 31304878.
      View in: PubMed
    2. Trudeau B, Trudeau C, Polfuss ML, Sullivan-Bolyai S. A Developmental Milestones Map of Type 1 Diabetes Self-Management Transition From Parents to Adolescents. Diabetes Spectr. 2019 Feb; 32(1):21-29. PMID: 30853761.
      View in: PubMed
    3. Cody SE, Sullivan-Bolyai S, Reid-Ponte P. Making a Connection: Family Experiences With Bedside Rounds in the Intensive Care Unit. Crit Care Nurse. 2018 Jun; 38(3):18-26. PMID: 29858192.
      View in: PubMed
    4. Rosenberg RE, Williams E, Ramchandani N, Rosenfeld P, Silber B, Schlucter J, Geraghty G, Sullivan-Bolyai S. Provider Perspectives on Partnering With Parents of Hospitalized Children to Improve Safety. Hosp Pediatr. 2018 Jun; 8(6):330-337. PMID: 29716958.
      View in: PubMed
    5. Moreau P, Sullivan-Bolyai S, Ndiwane AN, Jaffarian CA. Development and Psychometric Testing of a Measure to Evaluate Faculty Engagement With Underrepresented Minority Nursing Students. J Nurs Meas. 2017 Aug 01; 25(2):108-129. PMID: 28789743.
      View in: PubMed
    6. Rearson M, Sullivan-Bolyai S. Management of Type 1 Diabetes in Children in the First 5 Years of Life. Pediatr Endocrinol Rev. 2017 Jun; 14(Suppl 2):412-421. PMID: 28647944.
      View in: PubMed
    7. Sullivan-Bolyai S. Facilitating Family-Rich Outcomes for Families With Children Who Have Special Health Care Needs. J Fam Nurs. 2017 May; 23(2):167-174. PMID: 28795895.
      View in: PubMed
    8. Raymond KY, Willis DG, Sullivan-Bolyai S. Parents Caring For Adult Children With Serious Mental Illness. J Am Psychiatr Nurses Assoc. 2017 Jan 01; 1078390316685404. PMID: 28060601.
      View in: PubMed
    9. Bova C, Jaffarian C, Crawford S, Quintos JB, Lee M, Sullivan-Bolyai S. Intervention Fidelity: Monitoring Drift, Providing Feedback, and Assessing the Control Condition. Nurs Res. 2017 Jan/Feb; 66(1):54-59. PMID: 27977568.
      View in: PubMed
    10. Ramchandani N, Johnson K, Cullen K, Hamm T, Bisordi J, Sullivan-Bolyai S. CDE Perspectives of Providing New-Onset Type 1 Diabetes Education Using Formal Vignettes and Simulation. Diabetes Educ. 2017 Feb; 43(1):97-104. PMID: 28118129.
      View in: PubMed
    11. Sullivan-Bolyai S, Crawford S, Johnson K, Ramchandani N, Quinn D, D'Alesandro B, Stern K, Lipman T, Melkus G, Streisand R. PREP-T1 (Preteen Re-Education With Parents-Type 1 Diabetes) Feasibility Intervention Results. J Fam Nurs. 2016 Nov; 22(4):579-605. PMID: 27903941.
      View in: PubMed
    12. Rosenberg RE, Rosenfeld P, Williams E, Silber B, Schlucter J, Deng S, Geraghty G, Sullivan-Bolyai S. Parents' Perspectives on "Keeping Their Children Safe" in the Hospital. J Nurs Care Qual. 2016 Oct-Dec; 31(4):318-26. PMID: 27219828.
      View in: PubMed
    13. Pagano-Therrien J, Sullivan-Bolyai S. Research Participation Decision-Making Among Youth and Parents of Youth With Chronic Health Conditions. J Pediatr Health Care. 2017 Mar - Apr; 31(2):167-177. PMID: 27553117.
      View in: PubMed
    14. Willis DG, Sullivan-Bolyai S, Knafl K, Cohen MZ. Distinguishing Features and Similarities Between Descriptive Phenomenological and Qualitative Description Research. West J Nurs Res. 2016 Sep; 38(9):1185-204. PMID: 27106878.
      View in: PubMed
    15. Channon S, Lowes L, Gregory JW, Grey L, Sullivan-Bolyai S. Feasibility of Parent-to-Parent Support in Recently Diagnosed Childhood Diabetes: The PLUS Study. Diabetes Educ. 2016 Aug; 42(4):462-9. PMID: 27099255.
      View in: PubMed
    16. Ramchandani N, Maguire LL, Stern K, Quintos JB, Lee M, Sullivan-Bolyai S. PETS-D (parents education through simulation-diabetes): Parents' qualitative results. Patient Educ Couns. 2016 Aug; 99(8):1362-7. PMID: 27021779.
      View in: PubMed
    17. Maguire LL, Crawford S, Sullivan-Bolyai S. Grandparent Education Through Simulation-Diabetes. Diabetes Educ. 2015 Dec; 41(6):678-89. PMID: 26424677.
      View in: PubMed
    18. Sullivan-Bolyai S, Crawford S, Bova C, Lee M, Quintos JB, Johnson K, Cullen K, Hamm T, Bisordi J, Ramchandani N, Fletcher J, Quinn D, Jaffarian C, Lipman T, Melkus G. PETS-D: Impact on Diabetes Management Outcomes. Diabetes Educ. 2015 Oct; 41(5):537-49. PMID: 26246593.
      View in: PubMed
    19. Hughes P, Johnson K, Ramchandani N, Quinn D, D'Alesandro B, Streisand R, Sullivan-Bolyai S. Preteen-parent experiences with PREP-T1 feasibility intervention. Diabetes Educ. 2015 Aug; 41(4):452-8. PMID: 26009556.
      View in: PubMed
    20. Moreau P, Crawford S, Sullivan-Bolyai S. Methodological challenges collecting parent phone-call healthcare utilization data. Appl Nurs Res. 2016 Feb; 29:64-9. PMID: 26856491.
      View in: PubMed
    21. Sullivan-Bolyai S, Johnson K, Cullen K, Hamm T, Bisordi J, Blaney K, Maguire L, Melkus G. Tried and true: self-regulation theory as a guiding framework for teaching parents diabetes education using human patient simulation. ANS Adv Nurs Sci. 2014 Oct-Dec; 37(4):340-9. PMID: 25365286.
      View in: PubMed
    22. Sullivan-Bolyai S, Bova C, Lowes L, Channon S. Revisiting a non-significant findings study: a parent mentor intervention trial as exemplar. Appl Nurs Res. 2014 Nov; 27(4):213-8. PMID: 24661347.
      View in: PubMed
    23. Sullivan-Bolyai S, Bova C, Johnson K, Cullen K, Jaffarian C, Quinn D, Aroke EN, Crawford S, Lee MM, Gupta O. Engaging teens and parents in collaborative practice: perspectives on diabetes self-management. Diabetes Educ. 2014 Mar-Apr; 40(2):178-90. PMID: 24470041.
      View in: PubMed
    24. Sullivan-Bolyai SL, Feetham S. History lesson: how a little girl and her family moved mountains to change care and policy to help children with special health care needs go home. J Fam Nurs. 2013 May; 19(2):278-80. PMID: 23625620.
      View in: PubMed
    25. Bova C, Drexler D, Sullivan-Bolyai S. Reframing the influence of the Health Insurance Portability and Accountability Act on research. Chest. 2012 Mar; 141(3):782-6. PMID: 22396563.
      View in: PubMed
    26. Sullivan-Bolyai S, Crawford S, Johnson K, Huston B, Lee MM. Educating diabetes camp counselors with a human patient simulator: a pilot study. J Spec Pediatr Nurs. 2012 Apr; 17(2):121-8. PMID: 22463472.
      View in: PubMed
    27. Sullivan-Bolyai S, Bova C, Lee M, Johnson K. Development and pilot testing of a parent education intervention for type 1 diabetes: parent education through simulation-diabetes. Diabetes Educ. 2012 Jan-Feb; 38(1):50-7. PMID: 22222512.
      View in: PubMed
    28. Sullivan-Bolyai, S. Crawford, S. Lee, M. .Accepted. Journal for Specialists in Pediatric Nursing. Educating diabetes camp counselors with a human patient simulator. 2012; (in press).
    29. Bova, C. Drexler, D. Sullivan-Bolyai, S. Chest. Reframing the influence of the HIPAA on research. 2012; 141:782-786.
    30. Sullivan-Bolyai S, Bova C, Lee M, Gruppuso PA. Mentoring fathers of children newly diagnosed with T1DM. MCN Am J Matern Child Nurs. 2011 Jul-Aug; 36(4):224-31. PMID: 21709518.
      View in: PubMed
    31. Rearick EM, Sullivan-Bolyai S, Bova C, Knafl KA. Parents of children newly diagnosed with type 1 diabetes: experiences with social support and family management. Diabetes Educ. 2011 Jul-Aug; 37(4):508-18. PMID: 21700814.
      View in: PubMed
    32. Keough L, Sullivan-Bolyai S, Crawford S, Schilling L, Dixon J. Self-management of Type 1 Diabetes Across Adolescence. Diabetes Educ. 2011 Jul-Aug; 37(4):486-500. PMID: 21602489.
      View in: PubMed
    33. Sullivan-Bolyai S, Lee MM. Parent mentor perspectives on providing social support to empower parents. Diabetes Educ. 2011 Jan-Feb; 37(1):35-43. PMID: 21292621.
      View in: PubMed
    34. Deshefy-Longhi, T. Sullivan-Bolyai, S. Dixon, J.K. Southern Online Journal of Nursing Research. Data collection order: A primer. 2010; 9(3).
    35. Sullivan-Bolyai S, Bova C, Leung K, Trudeau A, Lee M, Gruppuso P. Social Support to Empower Parents (STEP): an intervention for parents of young children newly diagnosed with type 1 diabetes. Diabetes Educ. 2010 Jan-Feb; 36(1):88-97. PMID: 20016058.
      View in: PubMed
    36. Bova C, Ogawa LF, Sullivan-Bolyai S. Hepatitis C treatment experiences and decision making among patients living with HIV infection. J Assoc Nurses AIDS Care. 2010 Jan-Feb; 21(1):63-74. PMID: 19853480.
      View in: PubMed
    37. Sullivan-Bolyai S. Familias Apoyadas: Latino families supporting each other for diabetes care. J Pediatr Nurs. 2009 Dec; 24(6):495-505. PMID: 19931147.
      View in: PubMed
    38. Deshefy-Longhi T, Sullivan-Bolyai S, Dixon JK. Data Collection Order: A Primer. South Online J Nurs Res. 2009; 9(3):6. PMID: 20671807.
      View in: PubMed
    39. Howland L, Sullivan-Bolyai S, Bova C, Klar R, Harper D, Schilling L. The research advisory committee: an effective forum for developing a research dynamic environment. J Prof Nurs. 2008 Jul-Aug; 24(4):241-5. PMID: 18662660.
      View in: PubMed
    40. Sullivan-Bolyai S, Bova C, Deatrick JA, Knafl K, Grey M, Leung K, Trudeau A. Barriers and strategies for recruiting study participants in clinical settings. West J Nurs Res. 2007 Jun; 29(4):486-500. PMID: 17538128.
      View in: PubMed
    41. Sullivan-Bolyai S, Rosenberg R, Bayard M. Fathers' reflections on parenting young children with type 1 diabetes. MCN Am J Matern Child Nurs. 2006 Jan-Feb; 31(1):24-31. PMID: 16371822.
      View in: PubMed
    42. Sullivan-Bolyai S, Bova C, Harper D. Developing and refining interventions in persons with health disparities: the use of qualitative description. Nurs Outlook. 2005 May-Jun; 53(3):127-33. PMID: 15988449.
      View in: PubMed
    43. Sullivan-Bolyai S, Grey M, Deatrick J, Gruppuso P, Giraitis P, Tamborlane W. Helping other mothers effectively work at raising young children with type 1 diabetes. Diabetes Educ. 2004 May-Jun; 30(3):476-84. PMID: 15208845.
      View in: PubMed
    44. Sullivan-Bolyai S, Knafl KA, Sadler L, Gilliss CL. Great expectations: a position description for parents as caregivers: Part II. Pediatr Nurs. 2004 Jan-Feb; 30(1):52-6. PMID: 15022853.
      View in: PubMed
    45. Sullivan-Bolyai S, Knafl K, Tamborlane W, Grey M. Parents' reflections on managing their children's diabetes with insulin pumps. J Nurs Scholarsh. 2004; 36(4):316-23. PMID: 15636411.
      View in: PubMed
    46. Sullivan-Bolyai S, Sadler L, Knafl KA, Gilliss CL. Great expectations: a position description for parents as caregivers: Part I. Pediatr Nurs. 2003 Nov-Dec; 29(6):457-61. PMID: 14743843.
      View in: PubMed
    47. Sullivan-Bolyai S, Knafl K, Deatrick J, Grey M. Maternal management behaviors for young children with type 1 diabetes. MCN Am J Matern Child Nurs. 2003 May-Jun; 28(3):160-6. PMID: 12771694.
      View in: PubMed
    48. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: mothers' work parenting young children with type 1 diabetes. J Pediatr Nurs. 2003 Feb; 18(1):21-9. PMID: 12610784.
      View in: PubMed
    49. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Mothers' experiences raising young children with type 1 diabetes. J Spec Pediatr Nurs. 2002 Jul-Sep; 7(3):93-103. PMID: 12236249.
      View in: PubMed
    50. Grey M, Sullivan-Bolyai S. Key issues in chronic illness research: lessons from the study of children with diabetes. J Pediatr Nurs. 1999 Dec; 14(6):351-8. PMID: 10638049.
      View in: PubMed
    51. Grey M, Boland EA, Davidson M, Yu C, Sullivan-Bolyai S, Tamborlane WV. Short-term effects of coping skills training as adjunct to intensive therapy in adolescents. Diabetes Care. 1998 Jun; 21(6):902-8. PMID: 9614605.
      View in: PubMed
    52. Grey M, Boland EA, Yu C, Sullivan-Bolyai S, Tamborlane WV. Personal and family factors associated with quality of life in adolescents with diabetes. Diabetes Care. 1998 Jun; 21(6):909-14. PMID: 9614606.
      View in: PubMed
    53. Sullivan-Bolyai S. Practical aspects of toilet training the child with a physical disability. Issues Compr Pediatr Nurs. 1986; 9(2):79-96. PMID: 3633921.
      View in: PubMed
    54. Sullivan-Bolyai S, Swanson M, Shurtleff DB. Toilet training the child with neurogenic impairment of bowel and bladder function. Issues Compr Pediatr Nurs. 1984; 7(1):33-43. PMID: 6370933.
      View in: PubMed
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