Header Logo

Susan Lynn Sullivan-Bolyai DNSc, MN, RN, CNS, FAAN

TitleProfessor
Endowed TitleMarcellette G. Williams Scholar
InstitutionUMass Chan Medical School
DepartmentGraduate School of Nursing
AddressUMass Chan Medical School
55 Lake Avenue North
Worcester MA 01655
vCardDownload vCard
    Other Positions
    InstitutionT.H. Chan School of Medicine
    DepartmentPediatrics

    InstitutionTan Chingfen Graduate School of Nursing
    DepartmentGraduate School of Nursing


    Collapse Biography 
    Collapse education and training
    Metropolitan State College of Denver, Denver, CO, United StatesBSNNursing
    Emory University, Atlanta, GA, United StatesMSNChild Health
    Yale University, New Haven, CT, United StatesDNSCNursing Science & Research
    Yale University, New HavenPost-Doctoral Fellowship7/2002Family focused interventions

    Collapse Overview 
    Collapse overview
    For decades Dr. Sullivan-Bolyai has worked clinically with children who have special health care needs and their families on day-to-day management and continuity of care (masters/CNS from Emory University). Since 1995 she has focused her research on preparation, education and support for families to help manage childrens’ care in the home and community settings. She received her DNSc and completed a 3-year postdoctoral fellowship (with Dr. Margaret Grey) at Yale University School of Nursing. Her main areas of expertise are family-focused interventions that address parent and child social support and education for Type 1 Diabetes day-to-day management, including the innovation of using a child-size human patient simulator for parent and child education. She also uses qualitative description to inform her interventions. She was a faculty member for 11 years at UMW; followed by 2 years as Director of PhD Program at NYU Meyers CN; Dr. Sulivan-Bolyai has returned to UMMS as the Associate Dean of Research and Innovation and looks forward to working with her intra and interprofessional colleagues and PhD students towards improving the day-to-day management of families with children diagnosed with T1D.

    Collapse Bibliographic 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    Newest   |   Oldest   |   Most Cited   |   Most Discussed   |   Timeline   |   Field Summary   |   Plain Text
    PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. Sullivan-Bolyai S, L'Esperance S. Reflections on virtual research conferences and PhD student socialization: The missing link of in-person human connectedness. Appl Nurs Res. 2022 04; 64:151553. PMID: 35307125.
      Citations:    Fields:    Translation:Humans
    2. Sadlon P, Charron-Prochownik D, Sullivan-Bolyai S. "Together We Can Return to Balance"-Eastern Woodlands Native Perspectives and Type 2 Diabetes: A Qualitative Study. Diabetes Educ. 2020 12; 46(6):597-606. PMID: 33126843.
      Citations:    Fields:    Translation:Humans
    3. Morris NS, Wassef ME, Sullivan-Bolyai S, Bova C, Kane AT. Making explicit the development of PhD-prepared nurses to steward the discipline. Nurs Outlook. 2021 Jan-Feb; 69(1):50-56. PMID: 33070981.
      Citations: 4     Fields:    Translation:Humans
    4. Sullivan-Bolyai S, Bova C, Johnson K. Development and Psychometric Testing of the Peer-Mentor Support Scale for Parents of Children With Type 1 Diabetes and for Youths With Type 1 Diabetes. Diabetes Educ. 2020 04; 46(2):191-196. PMID: 32133921.
      Citations:    Fields:    Translation:Humans
    5. Sullivan-Bolyai S, Pellegrini L, Boucher J, Gravlin G, O'Neil W, Coco A, Vitello J. Using a Nursing Salon to Identify and Develop an Initiative for Family Caregivers of Older Adults. J Nurs Adm. 2020 Jan; 50(1):40-44. PMID: 31809455.
      Citations:    Fields:    Translation:Humans
    6. Ramchandani N, Way N, Melkus GD, Sullivan-Bolyai S. Challenges to Diabetes Self-Management in Emerging Adults With Type 1 Diabetes. Diabetes Educ. 2019 10; 45(5):484-497. PMID: 31304878.
      Citations: 5     Fields:    Translation:Humans
    7. Trudeau B, Trudeau C, Polfuss ML, Sullivan-Bolyai S. A Developmental Milestones Map of Type 1 Diabetes Self-Management Transition From Parents to Adolescents. Diabetes Spectr. 2019 Feb; 32(1):21-29. PMID: 30853761.
      Citations:    
    8. Cody SE, Sullivan-Bolyai S, Reid-Ponte P. Making a Connection: Family Experiences With Bedside Rounds in the Intensive Care Unit. Crit Care Nurse. 2018 Jun; 38(3):18-26. PMID: 29858192.
      Citations: 3     Fields:    Translation:Humans
    9. Rosenberg RE, Williams E, Ramchandani N, Rosenfeld P, Silber B, Schlucter J, Geraghty G, Sullivan-Bolyai S. Provider Perspectives on Partnering With Parents of Hospitalized Children to Improve Safety. Hosp Pediatr. 2018 06; 8(6):330-337. PMID: 29716958.
      Citations: 3     Fields:    Translation:Humans
    10. Moreau P, Sullivan-Bolyai S, Ndiwane AN, Jaffarian CA. Development and Psychometric Testing of a Measure to Evaluate Faculty Engagement With Underrepresented Minority Nursing Students. J Nurs Meas. 2017 Aug 01; 25(2):108-129. PMID: 28789743.
      Citations:    Fields:    Translation:Humans
    11. Rearson M, Sullivan-Bolyai S. Management of Type 1 Diabetes in Children in the First 5 Years of Life. Pediatr Endocrinol Rev. 2017 Jun; 14(Suppl 2):412-421. PMID: 28647944.
      Citations: 1     Fields:    Translation:Humans
    12. Sullivan-Bolyai S. Facilitating Family-Rich Outcomes for Families With Children Who Have Special Health Care Needs. J Fam Nurs. 2017 05; 23(2):167-174. PMID: 28795895.
      Citations: 1     Fields:    Translation:Humans
    13. Raymond KY, Willis DG, Sullivan-Bolyai S. Parents Caring For Adult Children With Serious Mental Illness. J Am Psychiatr Nurses Assoc. 2017 Mar/Apr; 23(2):119-132. PMID: 28060601.
      Citations: 2     Fields:    Translation:Humans
    14. Bova C, Jaffarian C, Crawford S, Quintos JB, Lee M, Sullivan-Bolyai S. Intervention Fidelity: Monitoring Drift, Providing Feedback, and Assessing the Control Condition. Nurs Res. 2017 Jan/Feb; 66(1):54-59. PMID: 27977568.
      Citations: 7     Fields:    Translation:Humans
    15. Ramchandani N, Johnson K, Cullen K, Hamm T, Bisordi J, Sullivan-Bolyai S. CDE Perspectives of Providing New-Onset Type 1 Diabetes Education Using Formal Vignettes and Simulation. Diabetes Educ. 2017 02; 43(1):97-104. PMID: 28118129.
      Citations:    Fields:    Translation:Humans
    16. Sullivan-Bolyai S, Crawford S, Johnson K, Ramchandani N, Quinn D, D'Alesandro B, Stern K, Lipman T, Melkus G, Streisand R. PREP-T1 (Preteen Re-Education With Parents-Type 1 Diabetes) Feasibility Intervention Results. J Fam Nurs. 2016 11; 22(4):579-605. PMID: 27903941.
      Citations: 3     Fields:    Translation:Humans
    17. Rosenberg RE, Rosenfeld P, Williams E, Silber B, Schlucter J, Deng S, Geraghty G, Sullivan-Bolyai S. Parents' Perspectives on "Keeping Their Children Safe" in the Hospital. J Nurs Care Qual. 2016 Oct-Dec; 31(4):318-26. PMID: 27219828.
      Citations: 5     Fields:    Translation:Humans
    18. Pagano-Therrien J, Sullivan-Bolyai S. Research Participation Decision-Making Among Youth and Parents of Youth With Chronic Health Conditions. J Pediatr Health Care. 2017 Mar - Apr; 31(2):167-177. PMID: 27553117.
      Citations: 3     Fields:    Translation:Humans
    19. Willis DG, Sullivan-Bolyai S, Knafl K, Cohen MZ. Distinguishing Features and Similarities Between Descriptive Phenomenological and Qualitative Description Research. West J Nurs Res. 2016 09; 38(9):1185-204. PMID: 27106878.
      Citations: 36     Fields:    Translation:Humans
    20. Channon S, Lowes L, Gregory JW, Grey L, Sullivan-Bolyai S. Feasibility of Parent-to-Parent Support in Recently Diagnosed Childhood Diabetes: The PLUS Study. Diabetes Educ. 2016 08; 42(4):462-9. PMID: 27099255.
      Citations: 3     Fields:    Translation:Humans
    21. Ramchandani N, Maguire LL, Stern K, Quintos JB, Lee M, Sullivan-Bolyai S. PETS-D (parents education through simulation-diabetes): Parents' qualitative results. Patient Educ Couns. 2016 08; 99(8):1362-7. PMID: 27021779.
      Citations:    Fields:    Translation:Humans
    22. Maguire LL, Crawford S, Sullivan-Bolyai S. Grandparent Education Through Simulation-Diabetes. Diabetes Educ. 2015 12; 41(6):678-89. PMID: 26424677.
      Citations:    Fields:    Translation:Humans
    23. Sullivan-Bolyai S, Crawford S, Bova C, Lee M, Quintos JB, Johnson K, Cullen K, Hamm T, Bisordi J, Ramchandani N, Fletcher J, Quinn D, Jaffarian C, Lipman T, Melkus G. PETS-D: Impact on Diabetes Management Outcomes. Diabetes Educ. 2015 10; 41(5):537-49. PMID: 26246593.
      Citations: 5     Fields:    Translation:Humans
    24. Hughes P, Johnson K, Ramchandani N, Quinn D, D'Alesandro B, Streisand R, Sullivan-Bolyai S. Preteen-parent experiences with PREP-T1 feasibility intervention. Diabetes Educ. 2015 08; 41(4):452-8. PMID: 26009556.
      Citations: 1     Fields:    Translation:Humans
    25. Moreau P, Crawford S, Sullivan-Bolyai S. Methodological challenges collecting parent phone-call healthcare utilization data. Appl Nurs Res. 2016 Feb; 29:64-9. PMID: 26856491.
      Citations:    Fields:    Translation:Humans
    26. Sullivan-Bolyai S, Johnson K, Cullen K, Hamm T, Bisordi J, Blaney K, Maguire L, Melkus G. Tried and true: self-regulation theory as a guiding framework for teaching parents diabetes education using human patient simulation. ANS Adv Nurs Sci. 2014 Oct-Dec; 37(4):340-9. PMID: 25365286.
      Citations: 3     Fields:    Translation:Humans
    27. Sullivan-Bolyai S, Bova C, Lowes L, Channon S. Revisiting a non-significant findings study: a parent mentor intervention trial as exemplar. Appl Nurs Res. 2014 Nov; 27(4):213-8. PMID: 24661347.
      Citations: 1     Fields:    Translation:Humans
    28. Sullivan-Bolyai S, Bova C, Johnson K, Cullen K, Jaffarian C, Quinn D, Aroke EN, Crawford S, Lee MM, Gupta O. Engaging teens and parents in collaborative practice: perspectives on diabetes self-management. Diabetes Educ. 2014 Mar-Apr; 40(2):178-90. PMID: 24470041.
      Citations: 7     Fields:    Translation:Humans
    29. Sullivan-Bolyai SL, Feetham S. History lesson: how a little girl and her family moved mountains to change care and policy to help children with special health care needs go home. J Fam Nurs. 2013 May; 19(2):278-80. PMID: 23625620.
      Citations:    Fields:    Translation:Humans
    30. Bova C, Drexler D, Sullivan-Bolyai S. Reframing the influence of the Health Insurance Portability and Accountability Act on research. Chest. 2012 Mar; 141(3):782-786. PMID: 22396563.
      Citations: 1     Fields:    Translation:Humans
    31. Sullivan-Bolyai S, Crawford S, Johnson K, Huston B, Lee MM. Educating diabetes camp counselors with a human patient simulator: a pilot study. J Spec Pediatr Nurs. 2012 Apr; 17(2):121-8. PMID: 22463472.
      Citations: 6     Fields:    Translation:Humans
    32. Sullivan-Bolyai S, Bova C, Lee M, Johnson K. Development and pilot testing of a parent education intervention for type 1 diabetes: parent education through simulation-diabetes. Diabetes Educ. 2012 Jan-Feb; 38(1):50-7. PMID: 22222512.
      Citations: 14     Fields:    Translation:Humans
    33. Sullivan-Bolyai, S. Crawford, S. Lee, M. .Accepted. Journal for Specialists in Pediatric Nursing. Educating diabetes camp counselors with a human patient simulator. 2012; (in press).
    34. Bova, C. Drexler, D. Sullivan-Bolyai, S. Chest. Reframing the influence of the HIPAA on research. 2012; 141:782-786.
    35. Sullivan-Bolyai S, Bova C, Lee M, Gruppuso PA. Mentoring fathers of children newly diagnosed with T1DM. MCN Am J Matern Child Nurs. 2011 Jul-Aug; 36(4):224-31. PMID: 21709518.
      Citations: 8     Fields:    Translation:Humans
    36. Rearick EM, Sullivan-Bolyai S, Bova C, Knafl KA. Parents of children newly diagnosed with type 1 diabetes: experiences with social support and family management. Diabetes Educ. 2011 Jul-Aug; 37(4):508-18. PMID: 21700814.
      Citations: 21     Fields:    Translation:Humans
    37. Keough L, Sullivan-Bolyai S, Crawford S, Schilling L, Dixon J. Self-management of Type 1 Diabetes Across Adolescence. Diabetes Educ. 2011 Jul-Aug; 37(4):486-500. PMID: 21602489.
      Citations: 11     Fields:    Translation:Humans
    38. Sullivan-Bolyai S, Lee MM. Parent mentor perspectives on providing social support to empower parents. Diabetes Educ. 2011 Jan-Feb; 37(1):35-43. PMID: 21292621.
      Citations: 9     Fields:    Translation:Humans
    39. Deshefy-Longhi, T. Sullivan-Bolyai, S. Dixon, J.K. Southern Online Journal of Nursing Research. Data collection order: A primer. 2010; 9(3).
    40. Sullivan-Bolyai S, Bova C, Leung K, Trudeau A, Lee M, Gruppuso P. Social Support to Empower Parents (STEP): an intervention for parents of young children newly diagnosed with type 1 diabetes. Diabetes Educ. 2010 Jan-Feb; 36(1):88-97. PMID: 20016058.
      Citations: 33     Fields:    Translation:Humans
    41. Bova C, Ogawa LF, Sullivan-Bolyai S. Hepatitis C treatment experiences and decision making among patients living with HIV infection. J Assoc Nurses AIDS Care. 2010 Jan-Feb; 21(1):63-74. PMID: 19853480.
      Citations: 10     Fields:    Translation:Humans
    42. Sullivan-Bolyai S. Familias Apoyadas: Latino families supporting each other for diabetes care. J Pediatr Nurs. 2009 Dec; 24(6):495-505. PMID: 19931147.
      Citations: 3     Fields:    Translation:Humans
    43. Deshefy-Longhi T, Sullivan-Bolyai S, Dixon JK. Data Collection Order: A Primer. South Online J Nurs Res. 2009; 9(3):6. PMID: 20671807.
      Citations:    
    44. Howland L, Sullivan-Bolyai S, Bova C, Klar R, Harper D, Schilling L. The research advisory committee: an effective forum for developing a research dynamic environment. J Prof Nurs. 2008 Jul-Aug; 24(4):241-5. PMID: 18662660.
      Citations: 2     Fields:    Translation:Humans
    45. Sullivan-Bolyai S, Bova C, Deatrick JA, Knafl K, Grey M, Leung K, Trudeau A. Barriers and strategies for recruiting study participants in clinical settings. West J Nurs Res. 2007 Jun; 29(4):486-500. PMID: 17538128.
      Citations: 25     Fields:    Translation:Humans
    46. Sullivan-Bolyai S, Rosenberg R, Bayard M. Fathers' reflections on parenting young children with type 1 diabetes. MCN Am J Matern Child Nurs. 2006 Jan-Feb; 31(1):24-31. PMID: 16371822.
      Citations: 26     Fields:    Translation:Humans
    47. Sullivan-Bolyai S, Bova C, Harper D. Developing and refining interventions in persons with health disparities: the use of qualitative description. Nurs Outlook. 2005 May-Jun; 53(3):127-33. PMID: 15988449.
      Citations: 114     Fields:    Translation:Humans
    48. Sullivan-Bolyai S, Grey M, Deatrick J, Gruppuso P, Giraitis P, Tamborlane W. Helping other mothers effectively work at raising young children with type 1 diabetes. Diabetes Educ. 2004 May-Jun; 30(3):476-84. PMID: 15208845.
      Citations: 23     Fields:    Translation:HumansCTClinical Trials
    49. Sullivan-Bolyai S, Knafl KA, Sadler L, Gilliss CL. Great expectations: a position description for parents as caregivers: Part II. Pediatr Nurs. 2004 Jan-Feb; 30(1):52-6. PMID: 15022853.
      Citations: 4     Fields:    Translation:Humans
    50. Sullivan-Bolyai S, Knafl K, Tamborlane W, Grey M. Parents' reflections on managing their children's diabetes with insulin pumps. J Nurs Scholarsh. 2004; 36(4):316-23. PMID: 15636411.
      Citations: 17     Fields:    Translation:Humans
    51. Sullivan-Bolyai S, Sadler L, Knafl KA, Gilliss CL. Great expectations: a position description for parents as caregivers: Part I. Pediatr Nurs. 2003 Nov-Dec; 29(6):457-61. PMID: 14743843.
      Citations: 10     Fields:    Translation:Humans
    52. Sullivan-Bolyai S, Knafl K, Deatrick J, Grey M. Maternal management behaviors for young children with type 1 diabetes. MCN Am J Matern Child Nurs. 2003 May-Jun; 28(3):160-6. PMID: 12771694.
      Citations: 14     Fields:    Translation:Humans
    53. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: mothers' work parenting young children with type 1 diabetes. J Pediatr Nurs. 2003 Feb; 18(1):21-9. PMID: 12610784.
      Citations: 53     Fields:    Translation:Humans
    54. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Mothers' experiences raising young children with type 1 diabetes. J Spec Pediatr Nurs. 2002 Jul-Sep; 7(3):93-103. PMID: 12236249.
      Citations: 30     Fields:    Translation:Humans
    55. Grey M, Sullivan-Bolyai S. Key issues in chronic illness research: lessons from the study of children with diabetes. J Pediatr Nurs. 1999 Dec; 14(6):351-8. PMID: 10638049.
      Citations: 1     Fields:    Translation:Humans
    56. Grey M, Boland EA, Davidson M, Yu C, Sullivan-Bolyai S, Tamborlane WV. Short-term effects of coping skills training as adjunct to intensive therapy in adolescents. Diabetes Care. 1998 Jun; 21(6):902-8. PMID: 9614605.
      Citations: 38     Fields:    Translation:HumansCTClinical Trials
    57. Grey M, Boland EA, Yu C, Sullivan-Bolyai S, Tamborlane WV. Personal and family factors associated with quality of life in adolescents with diabetes. Diabetes Care. 1998 Jun; 21(6):909-14. PMID: 9614606.
      Citations: 66     Fields:    Translation:Humans
    58. Sullivan-Bolyai S. Practical aspects of toilet training the child with a physical disability. Issues Compr Pediatr Nurs. 1986; 9(2):79-96. PMID: 3633921.
      Citations:    Fields:    Translation:Humans
    59. Sullivan-Bolyai S, Swanson M, Shurtleff DB. Toilet training the child with neurogenic impairment of bowel and bladder function. Issues Compr Pediatr Nurs. 1984; 7(1):33-43. PMID: 6370933.
      Citations:    Fields:    Translation:Humans
    Sullivan-Bolyai's Networks
    Click the
    Explore
    buttons for more information and interactive visualizations!
    Concepts (201)
    Explore
    _
    Co-Authors (11)
    Explore
    _
    Similar People (60)
    Explore
    _
    Same Department Expand Description
    Explore
    _
    Physical Neighbors
    _