Below are the most recent publications written about "Patient Advocacy" by people in Profiles.
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Fantasia HC. The Role of Nurses in Political Advocacy. Nurs Womens Health. 2024 10; 28(5):323-324.
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Olayiwola O, Castillejo A, Louella M, Supercharger M, Harlow E, Dee L, Abdallah K, Kityo-Mutuluuza C, Adair JE, Orentas R, Dub? K. Nothing about us without us: Advocacy and engagement in genetic medicine. Sci Transl Med. 2024 May 08; 16(746):eadn2401.
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Raghu G, Ghazipura M, Fleming TR, Aronson KI, Behr J, Brown KK, Flaherty KR, Kazerooni EA, Maher TM, Richeldi L, Lasky JA, Swigris JJ, Busch R, Garrard L, Ahn DH, Li J, Puthawala K, Rodal G, Seymour S, Weir N, Danoff SK, Ettinger N, Goldin J, Glassberg MK, Kawano-Dourado L, Khalil N, Lancaster L, Lynch DA, Mageto Y, Noth I, Shore JE, Wijsenbeek M, Brown R, Grogan D, Ivey D, Golinska P, Karimi-Shah B, Martinez FJ. Meaningful Endpoints for Idiopathic Pulmonary Fibrosis (IPF) Clinical Trials: Emphasis on 'Feels, Functions, Survives'. Report of a Collaborative Discussion in a Symposium with Direct Engagement from Representatives of Patients, Investigators, the National Institutes of Health, a Patient Advocacy Organization, and a Regulatory Agency. Am J Respir Crit Care Med. 2024 03 15; 209(6):647-669.
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Sorrentino RM, DiCola LA, Friedman SH. COVID-19, Civil Commitment, and Ethics. J Am Acad Psychiatry Law. 2020 12; 48(4):436-441.
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Federico SG, Cull W, Olson L, Garg A, Racine AD, Fisher A, Dreyer B. United States Pediatricians' Attitudes Regarding Public Policies for Low-Income Children and Their Profession's Advocacy Priorities. Acad Pediatr. 2018 Sep - Oct; 18(7):783-788.
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Walsh RR, Krismer F, Galpern WR, Wenning GK, Low PA, Halliday G, Koroshetz WJ, Holton J, Quinn NP, Rascol O, Shaw LM, Eidelberg D, Bower P, Cummings JL, Abler V, Biedenharn J, Bitan G, Brooks DJ, Brundin P, Fernandez H, Fortier P, Freeman R, Gasser T, Hewitt A, H?glinger GU, Huentelman MJ, Jensen PH, Jeromin A, Kang UJ, Kaufmann H, Kellerman L, Khurana V, Klockgether T, Kim WS, Langer C, LeWitt P, Masliah E, Meissner W, Melki R, Ostrowitzki S, Piantadosi S, Poewe W, Robertson D, Roemer C, Schenk D, Schlossmacher M, Schmahmann JD, Seppi K, Shih L, Siderowf A, Stebbins GT, Stefanova N, Tsuji S, Sutton S, Zhang J. Recommendations of the Global Multiple System Atrophy Research Roadmap Meeting. Neurology. 2018 01 09; 90(2):74-82.
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Griswold MK. Reframing the Context of the Breastfeeding Narrative: A Critical Opportunity for Health Equity Through Evidence-Based Advocacy. J Hum Lact. 2017 05; 33(2):415-418.
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Larkin ME, Beardslee B, Cagliero E, Griffith CA, Milaszewski K, Mugford MT, Myerson JM, Ni W, Perry DJ, Winkler S, Witte ER. Ethical challenges experienced by clinical research nurses:: A qualitative study. Nurs Ethics. 2019 Feb; 26(1):172-184.
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White ES, Borok Z, Brown KK, Eickelberg O, Guenther A, Jenkins RG, Kolb M, Martinez FJ, Roman J, Sime P. An American Thoracic Society Official Research Statement: Future Directions in Lung Fibrosis Research. Am J Respir Crit Care Med. 2016 Apr 01; 193(7):792-800.
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Brady NC, Bruce S, Goldman A, Erickson K, Mineo B, Ogletree BT, Paul D, Romski MA, Sevcik R, Siegel E, Schoonover J, Snell M, Sylvester L, Wilkinson K. Communication Services and Supports for Individuals With Severe Disabilities: Guidance for Assessment and Intervention. Am J Intellect Dev Disabil. 2016 Mar; 121(2):121-38.